Assent From a Child Before Term Paper

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We could then ask the child again if he was willing to participate.

Question 3: Does the study off the prospect of direct benefit to the children enrolled?

Currently, there is no cure for the disease and we have not been told how the disease will impact his quality of life and if it will result in death. The study's longitudinal design may not produce results during his lifetime. I would need more information in order to access if the child would benefit directly.

Question 4: How severe is the child's fear? How insistent is he that he not be stuck?

I would use the conversation outlined in the second paragraph to evaluate his fear. I would also ask the parents for their assessment of his fear.

Question 5: Is there a way to alleviate the child's fear so that he can participate without using coercion or undue influence?

As suggested in Question 2, I would let the child observe a blood draw and let him determine if would like to go forward.

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See the procedure will improve his understanding of what was to happen and may even peak his curiosity.

Question 6: Could the child wait for a year or two and enroll in the study later (once his fear may have decreased)?

I believe this maybe a good alternative, however I would not wait a full year. I would try again within a month, this may have given the child more time to ask his parents questions and for the parents to have better prepared him for the blood draw. If this were unsuccessful, I….....

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