Children of Parents With Parkinson's Term Paper

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" Does she have faith that a more clear understanding of those problems among the medical establishment will become evident? "I wonder," she wrote, cryptically.

WHAT PARENTS WHO HAVE PD SHOULD SAY to THEIR CHILDREN: The Parkinson's Disease Society (www.parkinsons.org.uk) offers pertinent advice and counsel to those parents who have both PD and children. "A key message seems to be open and honest" when talking to your kids, the PDS Information Sheet suggests. "Don't keep it a secret." As soon as you are diagnosed with PD, explain to them what it means to your health and to their lives as part of the family as a whole.

Don't be vague or apologetic, the PDS suggests. Be specific and clear, and fully explain that PD is not contagious. Because of the fatigue associated with PD - and the "on-off fluctuations" that are inevitable - parents with PD may not be able to spend as much time with their children, and won't be able to get involved in as many activities as they would like to be involved with. To back that up, PDS writes about a real-life woman with PD named Tracy, who has a daughter, eight years old, named Ysabel.

There are times when I'm just waiting for her to get into bed, so I can get into bed straight afterwards!" Tracy explains. "Anything that involves an excursion (a walk or swimming) is very hard, especially as I mostly use a wheelchair when we go out." That said, Tracy also mentions that having a loving child like Ysabel gives Tracy "motivation to carry on when my Parkinson's is bad, or when I'm feeling down."

With all that children, in particular teenagers, have to cope with in this period (temptations with drugs, sex, gangs, electronic games and the Internet), "Parkinson's can be a very difficult extra burden to handle," the PDS article asserts.

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Another parent quoted by PDS is Gerry, who tries to put himself in his child's shoes, "a child with a parent with a condition like this, but to be honest, I can't really imagine how I'd cope."

In the early days of his disease, Gerry said the laughter in his family helped all to cope with the pain, "and we still laugh a lot." His son "can mimic perfectly all the Parkinson's symptoms - he's got my dyskinesias down to a tee!"

But still, laughter notwithstanding, it hurts Gerry a lot that he can't go to his child's school for parent's night and can't go to football games with his son. The good news - and PD parents need desperately to locate some positive aspects of their changed family lives - is that Gerry's wife takes the son to parent's nights, and sporting events. "With good communication and forward planning," parents who have PD can adapt and adjust, and keep their families intact.

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